Legislature(2005 - 2006)CAPITOL 106

01/24/2006 03:00 PM House HEALTH, EDUCATION & SOCIAL SERVICES


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* first hearing in first committee of referral
+ teleconferenced
= bill was previously heard/scheduled
+= HB 271 LIMIT OVERTIME FOR REGISTERED NURSES TELECONFERENCED
Heard & Held
*+ HB 357 STATUTORY REFERENCES TO DISABIITIES TELECONFERENCED
Heard & Held
HB 357-STATUTORY REFERENCES TO DISABILITIES                                                                                   
                                                                                                                                
3:09:53 PM                                                                                                                    
                                                                                                                                
CHAIR WILSON announced that the  first order of business would be                                                               
HOUSE BILL NO. 357, "An  Act updating the terminology in statutes                                                               
for  persons with  disabilities; and  providing for  an effective                                                               
date."                                                                                                                          
                                                                                                                                
[CHAIR  WILSON passed  the gavel  to Vice  Chair Seaton,  for the                                                               
duration of the meeting.]                                                                                                       
                                                                                                                                
3:13:42 PM                                                                                                                    
                                                                                                                                
CHAIR  WILSON,  speaking   as  the  prime  sponsor   of  HB  357,                                                               
paraphrased   from  the   following  written   sponsor  statement                                                               
[original punctuation provided]:                                                                                                
                                                                                                                                
     After  the Americans  with  Disabilities  Act of  1990,                                                                    
     most  states  modified  their  statutes  to  reflect  a                                                                    
     positive reference- changing  the word "handicapped" to                                                                    
     "person  with a  disability".   This  bill changes  all                                                                    
     Alaska  State  Statues  to rid  them  of  this  archaic                                                                    
     reference   that   has    negative   and   demoralizing                                                                    
     connotations  in reference  to a  person's ability  and                                                                    
     potential.     Using  "a  person  with   a  disability"                                                                    
     reflects language  that is in Federal  legislation- the                                                                    
     Federal Workforce  Investment Act, the  American's with                                                                    
     Disabilities  Act, the  Civil Rights  Act of  1991; The                                                                    
     Individuals with Disabilities  Education Act (IDEA) and                                                                    
     the Rehabilitation Act  of 1973 as amended  in 1992 and                                                                    
     1998.                                                                                                                      
                                                                                                                                
     These changes  are being proposed in  consultation with                                                                    
     the  Department of  Labor,  other  state agencies,  and                                                                    
     along with  the Governor's Council on  Disabilities and                                                                    
     Special  Education.   There is  support  for this  bill                                                                    
     from numerous  other organizations  such as  the South-                                                                    
     East Alaska Independent  Living Center, which represent                                                                    
     people with  disabilities.  This  bill is  not designed                                                                    
     to modify any existing  requirements or exemptions, nor                                                                    
     will  it  be  changing  any  existing  requirements  or                                                                    
     exemptions  with the  new terminology.    This bill  is                                                                    
     designed to  serve the constituents of  everyone across                                                                    
     the state  that are affected by  this existing negative                                                                    
     and demeaning terminology.                                                                                                 
                                                                                                                                
     I  ask  for  your  support  of HB  357  to  update  and                                                                    
     modernize the language that is in our Alaska Statutes.                                                                     
                                                                                                                                
3:16:14 PM                                                                                                                    
                                                                                                                                
CHAIR WILSON paraphrased a letter submitted by Joan O'Keefe,                                                                    
Executive Director, Southeast Alaska Independent Living,                                                                        
[original punctuation provided]:                                                                                                
                                                                                                                                
     We  strongly urge  the removal  of the  word "handicap"                                                                    
     from  the legal  vocabulary, noting  it as  a slur  and                                                                    
     reference  to begging  for food  (cap in  hand) as  our                                                                    
     people had to do less than  100 years ago.  Other terms                                                                    
     such   as   "mental  disabilities"   and   "emotionally                                                                    
     disturbed" can be  described differently and positively                                                                    
     as    "cognitive     disabilities"    and    "emotional                                                                    
     disabilities."                                                                                                             
                                                                                                                                
     American culture consistently  redefines itself through                                                                    
     language  and   sub-cultures  often  use   language  to                                                                    
     redefine  themselves.     Negroes  became  blacks  then                                                                    
     African-Americans.   Homosexuals  chose the  term "gay"                                                                    
     for  themselves.   People with  disabilities have  done                                                                    
     the  same   during  the  years,  attempting   to  fight                                                                    
     stereotypes and negative imagery.                                                                                          
                                                                                                                                
     Through  all  the  changes, person-first  language  has                                                                    
     become  the  most  effective  and  descriptive  of  all                                                                    
     choices.  As  the House Bill 357  passes from committee                                                                    
     to  committee, please  keep  in mind  that  we are  all                                                                    
     people first.   Some  people have  red hair,  some blue                                                                    
     eyes; some are  persons with developmental disabilities                                                                    
     and some  are persons who  experience low vision.   Yet                                                                    
     underneath it all,  we are simply human beings.   It is                                                                    
     in this vein we urge your support of House Bill 357.                                                                       
                                                                                                                                
3:17:55 PM                                                                                                                    
                                                                                                                                
GALE  SINNOT, Director,  Division  of Vocational  Rehabilitation,                                                               
Department  of  Labor  &  Workforce  Development  (DLWD),  stated                                                               
support for  HB 357.  She  named the various state  agencies that                                                               
would benefit from HB 357, and  said that the word handicapped is                                                               
an  archaic  term  which  invokes   a  negative  response  versus                                                               
terminology which reflects abilities.   In response to questions,                                                               
she explained  why the term  "handicapped" is  considered archaic                                                               
and provided the root of its  meaning.  She related that "persons                                                               
with  disabilities"  would   not  like  to  be   referred  to  as                                                               
"handicapped."                                                                                                                  
                                                                                                                                
3:23:03 PM                                                                                                                    
                                                                                                                                
KEVIN  GADSEY,  Independent   Living  Specialist  and  Counselor,                                                               
Southeast  Alaska   Independent  Living  (SAIL),   expressed  his                                                               
support of HB  357 stating that it represents the  best option of                                                               
terminology  available.    He  requested  additional  changes  as                                                               
follows:   page 2, line  6, replace "emotionally  disturbed" with                                                               
"emotional  disability";   page  2,  line  20,   replace  "mental                                                               
retardation" with  "developmental or cognitive  disability"; page                                                               
17,  line 28,  replace  "emotionally  disturbed" with  "emotional                                                               
disability".    He  emphasized   that  [Alaska's  State  Statute]                                                               
terminology  needs  to  be  contemporary  across  the  board  and                                                               
utilize  the standard  that  is used  throughout  the nation  and                                                               
preferred by the people characterized  by its usage.  In response                                                               
to a  question, he  stated that  the rule  of thumb  is to  be as                                                               
specific as possible  in the description [of  the disability] and                                                               
when  possible  to  name  the limitation.    He  highlighted  the                                                               
importance  of  being  recognized  as a  person  prior  to  being                                                               
categorized by terminology.  He  said that misuse of language may                                                               
also cause stereotypes.                                                                                                         
                                                                                                                                
3:29:51 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE  GATTO asked  whether pregnant  women/mothers with                                                               
toddlers  should  be  legally  allowed   to  use  parking  spaces                                                               
designated for the handicapped.                                                                                                 
                                                                                                                                
MR. GADSEY  opined that  pregnancy could be  seen as  a temporary                                                               
disability.   To further questions, he  clarified his recommended                                                               
terminology  changes  for  HB  357,  and  added  that  the  words                                                               
"serious" or  "severe" should  be changed  to "significant".   He                                                               
said that  in using  terminology it is  important to  find common                                                               
ground when addressing people of any disposition.                                                                               
                                                                                                                                
3:39:02 PM                                                                                                                    
                                                                                                                                
CARRIE PRADEGER,  Health and Social Services  Planner, Governor's                                                               
Council  on Disabilities  and  Special  Education, Department  of                                                               
Health  and Social  Services, stated  support ("Council")  for HB
357 and requested that the  bill also include language that would                                                               
respectfully  address   seniors,  mental  health   patients,  and                                                               
substance abusers.   She noted  that the committee  packet should                                                               
include  a letter  from  Kathleen  Fitzgerald, Chair,  Governor's                                                               
Council  on  Disabilities  and  Special  Education,  DHSS,  which                                                               
specifies the proposed changes.                                                                                                 
                                                                                                                                
VICE CHAIR  SEATON stated  that the changes  are included  in the                                                               
committee  packet in  the form  of  a conceptual  amendment.   He                                                               
reviewed  the  terms  being  discussed  for  change  as  follows:                                                               
"mentally  disturbed" changed  to "emotional  disability"; "those                                                               
who  are  ill"  changed  to  "with  an  infirmity";  and  "mental                                                               
retardation"   changed  to   either  "cognitive   disability"  or                                                               
"developmental  disability".   He  also  reviewed  the pages  and                                                               
lines  where  the terms  "aged,"  "infirm,"  or "alcoholics"  and                                                               
"drug  addicts"  appear  in  HB  357.   He  then  asked  for  the                                                               
Council's preferred replacement for "infirm".                                                                                   
                                                                                                                                
MS. PRADEGER  clarified that the  Council suggests  that "infirm"                                                               
be changed to  "someone with an illness".   However, she conceded                                                               
that additional "wordsmithing" may be necessary.                                                                                
                                                                                                                                
3:45:12 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE GARDNER suggested that  when referring to a person                                                               
who is frail, or with  constricted movement, the term "infirmity"                                                               
might be appropriate rather than "ill."                                                                                         
                                                                                                                                
MS.  PRADEGER  agreed, and  pointed  out  that "aged"  should  be                                                               
"seniors," and putting  "person" before the defining  term is the                                                               
Council's  primary concern  such  that the  language would  read:                                                               
"persons  with  developmental  disabilities";  "persons  who  are                                                               
blind";  "persons   with  mental  illness";  and   "persons  with                                                               
substance   abuse   disorders"   or  "persons   with   behavioral                                                               
health/substance abuse issues".                                                                                                 
                                                                                                                                
REPRESENTATIVE CISSNA suggested that it  may be helpful to have a                                                               
written source  for the  acceptable language  commonly in  use in                                                               
this  arena,  which would  be  helpful  to avoid  conflicts  when                                                               
implementing the appropriate terminology.                                                                                       
                                                                                                                                
3:49:06 PM                                                                                                                    
                                                                                                                                
CHAIR  WILSON pointed  out  that [the  bill  packet] includes  an                                                               
example of how Minnesota has  dealt with updating its statutes to                                                               
reflect  the  currently preferred  terms.    She highlighted  the                                                               
unanimity  in having  the word  "person"  preceding any  defining                                                               
term,  but  stated that  there  does  not  seem  to be  a  strict                                                               
standard, as  every state deals  with it slightly different.   In                                                               
response to a question, she stated  that it would be important to                                                               
comply with federal terminology,  especially regarding the use of                                                               
the term  "disorder," to avoid unnecessary  conflict resulting in                                                               
program funding issues.                                                                                                         
                                                                                                                                
3:52:00 PM                                                                                                                    
                                                                                                                                
CHAIR WILSON  moved to  adopt Amendment  1, which  read [original                                                               
punctuation provided]:                                                                                                          
                                                                                                                                
     Page  2, line  3: "(A)  itinerant outreach  services to                                                                    
     students who are deaf, deaf-blind, mentally… "                                                                         
                                                                                                                                
     Page 2,  line 6: "…  disturbed (and) or   students with                                                                
     multiple disabilities;"                                                                                                    
                                                                                                                                
     Page  9, line  3  & 4  "… and  usable  by persons  with                                                                    
     disabilities  (and by  the aged,)  seniors or  (infirm)                                                                
     those who are ill."                                                                                                    
                                                                                                                                
     Page 9,  line 12 & 13:  " … a person  with a disability                                                                    
     (or  an) a  (aged)   senior  citizen   or (infirm(  ill                                                        
     passenger…"                                                                                                                
                                                                                                                                
     Page  9,  line  22:"  (aged) seniors  or(  infirm)  ill                                                            
     passengers."                                                                                                               
                                                                                                                                
     Page 9,  line 25: "…disabilities and  by (aged) seniors                                                                
     or (infirm) ill passengers,…"                                                                                          
                                                                                                                                
     Page 10, line 4: "…aged or (infirm) ill."                                                                              
                                                                                                                              
     Page 13,  line 6, 7 &  8: "… services designed  to meet                                                                    
     the  (special)  needs  of children  with  disabilities,                                                                
     (the    aged)     seniors,    (the)     persons    with                                                        
     (developmentally)        developmental       (disabled)                                                            
     disabilities, (the  blind) persons who are  blind, (the                                                            
     mentally  ill)   persons  with  mental illness,  person                                                                
     with  physical disabilities,  and (alcoholics  and drug                                                                    
     addicts) persons with substance abuse disorders."                                                                      
                                                                                                                                
     Page  17, line  27: "  hearing, deaf,  speech impaired,                                                                    
     visually (disabled) impaired,  seriously…"                                                                             
                                                                                                                                
CHAIR WILSON indicated  the need to take more time  to review the                                                               
changes encompassed in  Amendment 1.  [The  committee treated the                                                               
motion to adopt Amendment 1 as withdrawn.]                                                                                      
                                                                                                                                
VICE  CHAIR SEATON  asked for  agreement to  change the  language                                                               
"emotionally disturbed" to "a  person with emotional disability,"                                                               
and   "or infirm" to "a  person with an infirmity,"  as indicated                                                               
in the amendment.                                                                                                               
                                                                                                                                
3:54:24 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE  GATTO  questioned   whether  inserting  the  word                                                               
"senior" in  place of "aged" provides  a useful characterization,                                                               
because the  term "senior" affords various  opportunities, and is                                                               
based on differing  ages.  He pointed out that  the term "senior"                                                               
is not defined in the legislation.                                                                                              
                                                                                                                                
REPRESENTATIVE GARDNER stated that if  the change were being made                                                               
from "infirm"  to "people  with an  infirmity," perhaps  the word                                                               
"senior" could be omitted.   Therefore, able-bodied seniors would                                                               
not fall under the statute.                                                                                                     
                                                                                                                                
3:57:23 PM                                                                                                                    
                                                                                                                                
VICE  CHAIR SEATON  directed the  committee's  attention to  each                                                               
line  of HB  357  that was  being amended  [all  pages and  lines                                                               
previously  annotated  in this  text].    He requested  committee                                                               
consensus  on the  terms that  were  suggested for  consideration                                                               
from the Governor's Council and  SAIL for the amendment re-write,                                                               
and he asked for any  other observations and suggestions from the                                                               
committee.                                                                                                                      
                                                                                                                                
REPRESENTATIVE GATTO  pointed out  that on page  17, line  27, of                                                               
the  amendment, the  word "disabled"  is removed  and substituted                                                               
with "impaired",  but in  the bill  "handicapped" is  removed and                                                               
"disabled" is substituted.                                                                                                      
                                                                                                                                
CHAIR WILSON explained that in  narrowing the area down to visual                                                               
problems  the  preferred  term   is  "visually  impaired"  versus                                                               
"visually disabled",  as submitted  by the Governor's  Council on                                                               
Disabilities and Special  Education, but she said  that she would                                                               
check on behalf of the committee for clarity.                                                                                   
                                                                                                                                
VICE CHAIR  SEATON stated his  intent to  have HB 357  before the                                                               
committee  again,  with  the  suggested  re-writes,  on  Thursday                                                               
[January 26, 2006].                                                                                                             
                                                                                                                                

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